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People from twenty-six countries had gathered to meet one man: Pope Francis, at The Vatican. The event came to life thanks to a coalition of HD advocates. Due to geographic isolation and a history with stigma — isolating people with HD from the rest of the community — the prevalence is to 1, times higher in South America than in other places. She asked if he could meet one single gene carrier. Why only meet one, when so many are suffering? And so it started with one, but ended up with 1, Families from Colombia, Venezuela and Argentina traveled to meet Pope Francis in the Vatican, as did hundreds of others from all over the world.

Five families received a formal invitation. They all had a special history with HD. During the audience the families sat on the front row.

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Among them was John Jairo from Colombia. John was forced to flee his hometown and later lost his job because of HD. Also from Colombia was Dilia; a 79 year old woman that had to bury four of her 11 children due to the disease. Now she is taking care of four of the others.

Brenda is 15 year old and has juvenile HD. Norma is her aunt, but treats her as a daughter.

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During the audience, Brenda got to meet one of her favorite artists: Axel. He performed a song for her on stage and accompanied the excited 15 year old when she met Pope Francis. From Venezuela was 13 year old Anyervi.

All these stories demonstrate why it is so important to remove the stigma that follows with HD. And why the disease should be Hidden No More. Pope Francis did an amazing contribution on the road to destigmatization. May none of you feel you are a burden. Sex chat webcam live stream from the rooms of naked girls who love Wirth sex on camera, come and chat without registration.

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Meet a girl on our portal is very simple, the most popular and. Danuta Liz had arranged for and traveled together with a group of 30 HD impacted people from Poland. The travel of the families from Poland was specifically supported by a donor who, upon hearing that there were not funds to support their trip, generously stepped in to provide it.

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The group was one of the biggest of its kind — together with the group from Italy. In addition to patient associations, there were research organizations, scientists and clinicians present at the event. The press coverage were huge, with international journalists filling up the press area. May none of you ever feel you are alone. You are not alone Pope Francis did an amazing contribution on the road to destigmatization. We use cookies to ensure that we give you the best experience on our website.

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